Saturday, 11 June 2016

Guillian-Barre Syndrome (Interview 2)

Melissa Higgs was an active little girl until the age of 5 when she was diagnosed with Guillian-Barre Syndrome.

Despite the symptoms she endured Melissa fought the condition.

Melissa kindly agreed to an interview with me in regards to GBS.

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An Interview With Melissa Higgs:

What is your name and age?
Melissa Higgs
27

When were you diagnosed with GBS?
When I was 5

What is GBS?
Guillian-Barre Syndrome it's a disease that kills all the nerves in your body.
Mine started as my immune system worked overtime to fight a general cold.

What symptoms did you have?
I couldn't walk and had lost all my coordination, I couldn't do anything for myself.
I couldn't feel myself go to the toilet.

How was a diagnosis made?
I had a lumber puncture to determine that it was Guillian-Barre Syndrome.

Were you hospitalised due to this condition?
I was in hospital for 10 weeks.
The doctors said age was on my side and it helped with how quick I recovered.
I was the first child in South Yorkshire to ever have it.

Is it hereditary?
No it's not hereditary

How has this condition affected your life?
If anything the condition had helped as I don't suffer with hardly any illness as my immune system is stronger.

What treatment did you receive?
I had physiotherapy to help me walk.
I had splints made to help me walk again.

What advice would you give others in a similar situation?
I would just say to anyone with it to stay positive and do everything the doctors say!!

"As I am here today to tell my story of
Guillian-Bare Syndrome and how I survived it"

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Help & Support:

http://www.mayoclinic.org/diseases-conditions/guillain-barre-syndrome/basics/coping-support/con-20025832

http://rarediseases.org/rare-diseases/guillain-barre-syndrome/

Friday, 10 June 2016

Bob The Blob - Maisie's Tumour.


Maisie is a beautiful young girl with a passion for dancing and gymnastics.

Over a short period of time things began to change; a squint in her eye, headaches, a weakness in her arm and difficulty in walking.

The result was heartbreaking when Maisie was finally diagnosed with a brain tumour.

After some time in hospital and surgery, it was confirmed the tumour was benign.

Maisie is slowly recovery and taking one step at a time.

Watch this space!
In time Maisie will be back on stage again..

Maisie's mother kindly agreed to an interview with me in order to raise awareness of her daughter's condition.

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The Interview:

What us your daughter's name and age?
Maisie, 10 almost 11.

When did you first notice there was a problem with Maisie's eyes?
At the end of November we noticed a turn in her right eye.

What did your optician diagnose it to be?
The optician said that he believed it was a squint - my husband mentioned that he had a lazy eye but his effects his eyelid not his actual eye. 
We have since been advised that Maisie has adult eyes and adult eyes do NOT develop a squint and especially this quickly

How was this dealt with?
He prescribed glasses and referred her to our local hospital for an Opthomology appointment - not as an urgent referral!!

Maisie's gym teacher noticed a weakness in Maisie's left arm, please explain in detail the exercises you taught Maisie and why?
It was Maisie's gym teacher that noticed the weakness - we bought her a gymnastics bar to practice chin ups and also started doing the plank every night to try and build up her arm strength

After a doctor's appointment Maisie was put on a waiting list to see an orthopaedic consultant, why did you pay privately instead of waiting?
When we were referred to the orthopaedic consultant I called to see how long we would have to wait and they said the referral had been received but we would have to wait. 
When the weakness then presented in her leg I called again and was told again that we had to wait - we were not prepared to wait as she could hardly walk so we contacted Spire (bupa) and basically saw the same consultant we would've seen if we had waited but we jumped the queue by probably about 6 weeks

What tests did the consultant do?
The consultant did a full body check testing her strength then sent her for blood tests and obviously the MRI

What result did the MRI show?
The MRI showed the brainstem with the tumour surrounding it

What was the process of the 2 hour full brain and upper body scan?
It was done as a full body scan as at the time we were ruling out everything.
She was conscious throughout the two hours.
It was only meant to be an hour or so but they then needed to put through the contrast dye which at the time we did not know where or why.

When was Maisie diagnosed with a brain tumour?
The MRI was done on 14 January and we were then told on 15 January.

Maisie named her tumour, Bob the Blob, why?
No reason behind the name, we were just having a conversation and I happened to mention that some people name their tumours so she did just that

What was the process of the 7 hour surgery?
The surgery was to retrieve a biopsy of the tumour and also to debulk as much of the tumour as was safely possible to remove

What was the cause of Maisie's lung collapsing?
We do not know why her lung collapsed, we think it was just because her body had had enough and I suppose being face down on the operating table for 7 hours didn't help

How was this treated?
It was treated by ventilation which is why she was put into a coma so that she could be ventilated and to allow her body to recover without having to work to hard. Basically all her body had to do was use her heart.

How long was Maisie in a coma for?
She was in the coma for about a week but it took two weeks for her to come round completely

The tumour turned out to be benign, a low grade known as; Pilocytic Astrocytoma, what was your initial reaction?
Relief!!!
One less thing to worry about and we could focus on her recovery

Why did Maisie have a tracheotomy tube?
The tracheostomy was put in to replace the ventilation tube in her mouth as at the time, Maisie's only way to communicate was for her to mouth words to us and with a tube in the way this was not possible

What did That's Life magazine do for Maisie and why?
They will be sending £500 for Maisie to buy an iPad to help with her recovery

Are there any complications to Maisie's health due to the tumour and/or surgery?
Maisie was paralysed after surgery but she is slowly regaining use of her body which will take time. 

What is Maisie's prognosis for the future?
The prognosis is take each day as it comes and whatever use she regains is more than we and anyone expected

What advice would you give other parents/guardians in a similar situation?
Don't ignore anything with your child.
Had Maisie's optician have told us to go and see someone about the eye rather than leaving us in the system for an appointment, Maisie would not have become so weak and things could have been different. 
When it comes to a child there is no price tag on getting a quicker diagnosis.

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Help & Support:

https://www.curebraincancer.org.au/page/12/childhood-brain-tumours

https://www.thebraintumourcharity.org/understanding-brain-tumours/symptoms-and-information/childhood-brain-tumours/

Guillian-Bare Syndrome

Sam Powell was a young healthy man until he was diagnosed with Guillain-Barre Syndrome.

Due to his condition, he was hospitalised but thankfully he is now on the road to recovery.

His loving and caring girlfriend Charlotte Coffey stood by him and together they are fighting this condition.

Charlotte arranged an EBay Auction and a Sponsored Walk in order to raise money for Leeds General Infirmary's ICU Department who cared for Sam while he was there.

Charlotte has kindly agreed to an interview with me in order to raise awareness of Sam's condition.

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An Interview With Charlotte Coffey:

What is your name and age?
Charlotte Coffey: 18

What is your boyfriend's name and age?
Sam Powell: 19

What is Guillian-Barre Syndrome?
Guillian-Barre Syndrome is an acute disease of the peripheral nervous system in which the nerves in the arms and legs become inflamed and stop working.
This causes sudden weakness leading the becoming paralysed.

When was Sam diagnosed?
Sam was diagnosed 13 March 2015

How was a diagnosis made?
The diagnosis was made by Nerve Conduction Study's, EMG, lumber puncher, number of blood tests

What symptoms did he / does he have?
Symptoms he had were pins and needles in his hands/feet for 2 days then his legs give way..
Symptoms now are just pains in legs and arms (legs most) little bit of weakness and getting hot easily and also tiredness.

What treatment did he receive?
Treatment- immunoglobulin  infusion and rehabilitation such as physiotherapy and hydrotherapy

What medication was he prescribed?
Medication- Gabapentin and citalorpram

Sam was in a coma due to his condition, how long did that last?
Sam was in a coma for 52 hours

How long was Sam hospitalised for?
Sam was in hospital for just short of 12 weeks (was in 2 hospitals)

What are the causes of this condition?
It's not official was causes GBS but some say it's to do with viral injection but Sam never had that so we don't know what caused it other than he had a bump in his car one month before.

Are there any long term complications due to the condition?
No long term complication for Sam but there does be in other people.

Is it hereditary?
No, not hereditary.

Please explain in detail about the EBay Auction.
Rugby League Auction- I contacted a number of rugby league stars on Facebook I library searched all rugby players and who had Facebook pages I messaged.
I informed them about what Sam's condition was and that I'm doing a rugby league auction.
All the players got back to me a lot of them couldn't donate and a lot do donate there shirts etc at end of each season but some got back to me donating signed shirts and signed rugby league balls.
I then arrange to get them from them and then I put them on eBay, posting it all over Facebook and Twitter with the link and then people bidded I raised £1000 from that.

Sponsored walk,- I'm a childminder and raised a super hero and princess walk.
13 children took park ages 1-4 and then they had a sponsored sheet that there families sponsored them.
We went around the wood near my house and they had so much fun.
The papers came and took pictures

What advice would you give others in a similar situation?
If I was to give advice it would be; if one of your family members gets diagnosed get yourself on Facebook on the GBS Facebook group it's such an amazing group with everyone that has been diagnosed with it and friends family and it's so useful to find loads of information and to ask questions.

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Facebook:

https://m.facebook.com/GuillianBarreSupport/ (page)

https://www.facebook.com/groups/25904251293/ (group)

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Help & Support:

http://www.healthline.com/health/guillain-barre-syndrome

http://www.gbs-cidp.org/

Thursday, 9 June 2016

Weight Watchers

What is your name and age?
Clare Louise Hurst 
29

What is your height?
Height 5.7

What was your starting weight and clothes size?
Starting weighting was 13 stone 1Ib.
I was a size 16 to 18 which was massive really as I was big but not over big.

What is your weight and clothes size now?
My weight now is 10 stone.
I am now a size 12 to 14, which is alot better than I was before as I look so different to back than.

How long did it take you to reach your goal weight?
It took me 12 weeks to get to my goal weight.

When and why did you decide to lose weight?
I lost weight in 2014.
I wanted to lose weight because I wanted to feel better in myself  with people looking at me thinking I was pregnant which I wasn't at all, so that's another reason why I wanted to lose weight as well

In order to lose weight you joined Weight Watchers, what was the process?
The process was to attended every Wednesday evening while the leader Jill talked about how to lose weight and how to do it by giving different examples as well which I thought was a great idea

Did you / Do you exercise?
I started doing exercise like Zumba classes every Tuesday and swimming as well which I do every two weeks and thinking of getting a pass so I can use at swimming baths.

Please tell me what your "before" menu was like?
Before I started dieting my meal menu was always the same.
Breakfast: frosties with sugar on than toast with butter and jam on white bread,
Dinner: cheese and lettuce sandwiches with ready salted crisps and a drink of coke as well.
Tea: sausage chips and beans and bread as well.
Supper: crisps chocolate

What is your menu like now?
Breakfast: Fruit and fibre cereal with skimmed Milk
Dinner: jacket potato with tuna
Tea; salad with tomatoes cucumber ham lettuce with an apple afterwards
Supper: just a yoghurt

When and why did you decide to enter a Beauty Pageant?
I started doing beauty pagents in 2015 because it has always being a dream of mine to do something like that as I am very passionate person and want to make something of myself so I looked into as I thought to myself why shouldn't I go for my dreams life to short do what makes me happy...

What support if any have you received?
My mum was helping me all the way by writing in my book what foods I was eating how much weight I lost.
She really inspired me to lose weight.

Did you / Do you have any health issues as a result of your "before" weight?
I had no health issues at all.

What advice would you give someone wanting to lose weight?
The advice I would give to someone who wants to lose weight, is don't be afraid to do it.
If you want to lose the weight go for it. You will feel better in yourself and you will have support as well.

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Help & Support:

http://www.weightwatchersfoods.co.uk/

Tuesday, 7 June 2016

Pontine Tegmental Cap Dysplasia


Patrick was born with a very rare condition called Pontine Tegmental Cap Dysplasia.

Despite his health issues, little Patrick has fought to stay by his twin's side.

Patrick's mother kindly agreed to an interview with me in relation to her son's condition so as to help raise awareness of it.

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The Interview:

What is Pontine Tegmental Cap Dysplasia?
A rare brain condition known in 19 others in the UK, the parts of the brain that are affected are the cerebellum, the brainstem and the pons.
Most children with this condition have one sided facial palsy and a rare eye condition called corneal anesthetisa (no nerves in the eyes) this means my son Patrick is at risk of corneal ulcers and can go blind easily.

When was Patrick diagnosed?
Patrcik is a twin, we went for our 20 week scan where they noticed issues with his kidneys which can be tell tail signs that something is wrong with the brain! Patrick has only one kidney they doesn't function as well as it should.
We were told he wouldn't make the pregnancy from MRI scans when I was pregnant.
We decided to let him lead his own path and make his own journey and he made it past delivery and he's now 15 months!
He was diagnosed properly after a MRI scan at 4 days old.

How was a diagnosis made?
MRI scan and genetics doctor on the neonatal intensive care unit

What symptoms did he / does he have? Patrick has right sided facial palsy, one kidney, corneal anesthetisa, epilepsy, high and low muscle town, unsafe swallow and is fed via gastrostomy (feeding tube in his belly) he has global development delay, auditory noropathy (hearing impairment) he is a happy soul to say he has had a rough start!

What is the cause?
The cause is unknown!
It's believed not to be genetic but big studies are going on in England and America that I know of to try and find out what the cause is.

Is it hereditary?
No, there are no families reported to have more than one child with this condition, it's life limiting so no one with this condition that I know of has been able to reach adulthood and have children

What treatment did he / does he receive?
Lots!
He has a paediatric consultant that sees him regularly keeps his medicines up to date and he sees his eye consultant kidney consultant and neurologist! Together they all try and keep things up to date.
He has physiotherapy and an occupational therapist too who are helping so much!

What support is available?
We have 16 hours a week for carers to come into our home to help care for Patrick.
We space it out so we can do the morning school run and leave him at home with them for his medicines and they help with bathing and physiotherapy.

What is Patrick's prognosis for the future?
His condition is life limiting, we do not know how long we have our little miracle boy but he has brought us so much.
He is so brave and he has fought so hard for his life and he's just starting to enjoy it, he smiles and interacts he is amazing!

What advice would you give other parents/guardians who's child is recently diagnosed with this condition?
Because it's so rare I searched and searched to try and find families with kids like my boy and I did!
I'd say it's a rough road ahead and the first year is the hardest but you will be the only person that knows your child!
Don't be afraid because your a special needs mum!
Take it all in because you sure don't know how long you have these little miracles for!
Life's about making memories and yes it breaks my heart everyday that my twins can't play together but now I forget the negatives and focus on the positives! Each day is different and brand new.

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Facebook:

https://m.facebook.com/Patrick130315/

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Go Fund Me:

https://www.gofundme.com/yf8974c

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Help & Support:

https://depts.washington.edu/joubert/pontinetegmentalcapdysplasia.php

Drug Awareness

Drugs are bad!
Drugs affect people's lives in many different ways.
Most drug addicts don't survive however one man named James has kindly agreed to an interview with me because he is a fighter and he has survived.
This blog is to raise awareness on the dangers of drug taking.

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What is your name and age?
My name is James and I am 29 years old

At what age did you first experiment with drugs?
I was about 12 or 13 when I first started experimenting with various drugs.

Who introduced you to drugs?
Every drug I have ever tried was always introduced to me by the same two friends I was close with since middle school.

What drugs were you taking?
It started off with marijuana in my younger years, then with alcohol, extasy, mushrooms and then eventually turned into heroin.

How did the drugs make you feel?
Once I found heroin it made me feel more confident in myself and felt like any worry or stress in my life wasn't as bad as I made it out to be without heroin.

How did you fund your habit?
At first I would work as much as possible to support my habit, then eventually came involved in crime.

How often per day/week/month were you engaging in substance abuse?
Once I found heroin I had no other choice other than to use every day, unless if I was in jail or treatment I was getting high and finding any way or means to do so.

On a "come down" how did you feel?
Withdrawing from heroin is the worst feeling in the world.
I have a high pain tolerance when it comes to everything other than withdrawal symptoms, its like constantly having the flu with cramps, diarrhea, restless legs, hot flashes with chills and the worst anxiety in the world, especially knowing all you need is more heroin and you'll feel completely better.

When you were unable to "obtain" drugs for whatever reason, how did you feel?
On days I was unable to get high felt like the worst days of my life, I felt like my world was ending and the anxiety of trying everything imaginable to get high to make the uncomfortable feelings go away was unbearable.
On those days especially I would try to get into a detox so I'd be comfortable until I could get more money to get high.

How did your friends/family react when they became aware of your drug taking?
My friends and family found out I was using drugs from what was a cry for attention from myself.
I was always looking for attention as the baby of the family, and to me negative attention was better than no attention and I put a link in my AIM (AOL Instant Messenger) profile that brought you to a link that said my three best friends with a picture of alcohol weed and heroin, heroin being the emphasis of the link.
My mother especially didn't want to believe it, she was in denial along with me lying saying it wasn't actually true kept her very naive about the situation.

Did/Does other family members take drugs?
Substance abuse does run in my family, my father who I never had a real relationship with is an addict, my cousins, aunts, uncles, and grandparents were either alcoholics or drug addicts.

Did you ever feel guilt or remorse for what you were doing?
I've always had a conscience, didn't matter if I was active or clean my conscience made my using very difficult at times.
98% of the time I ignored my conscience but it would always come back to bother me.
I would use my remorse as a driving force to get clean but also would use the guilt as a great reason to get high so I wouldn't have to feel that way any more.

Were you ever arrested due to the drugs?
Within the first 6 months of getting high I got arrested for a felony charge of larceny from a person and assault and battery.
I was the get away driver but knew what was planned.
I spent 2 years in "house of correction" for that crime, and throughout the next 12 years would either have violated probation or picking up other drug related charges such as possession and shoplifting.

When and why did you finally stop taking drugs?
When I got out of jail I was mandated to further treatment such as a half way house for the next 18 months after my release.
I violated probation over 7 times and what should have been 18 months of drug court took me 5 years to finally complete.
In those 5 years and multiple violation of probations I would be in and out of treatment from getting kicked out of one programme after the next due to relapses.
Once I finally completed drug court and my probation I got on the methadone clinic which I stayed on for 3 1/2 years and for 3 years of that I did really well.
The other half of the year I was coming off the methadone clinic and couldnt handle to sickness and relapsed which took me on another 3 year run.

What support did you receive?
My mother and few close family members have always supported me and been there when I would get clean, without them I may have given up along time ago.
And of course through 12 step fellowships I made friends and received support from them as well.

Do you have any health issues due to the drug taking?
Health issues directly related to my drug use are hep c, which I contracted at 18 years old while in jail, I used in there and shared a needle that was passed around the whole cell block basically.
Along with needing complete set of dentures from my teeth rotting due to drugs and the lifestyle I lived.

What advice would you give to someone who's thinking of taking drugs?
I've always been the type to try to help people anyway I can, and I found when it comes to advice its a touchy feely in the sense of what should be said, how you are saying it and where they are at in there life.
Giving advice to people that are either in the grips of active addiction or potentially thinking about experimenting with drugs isn't a one sized fits all solution so to speak.
When I was younger the older gentlemen would always try to tell me to get this while I am still young, but unfortunately for me I've always been the type that needed to learn first hand, and not very fond of being told what to do.
I've learned now that telling people what happened to me and countless others that I've witnessed first hand helps more than telling someone what will happen to them if they dont stop or if they pick up a drug for the first time.
Everyone likes to think they are different and better than the last person and feel like what happened to you wont happen to me.
For some people that holds true but unfortunately for countless amounts of others it does not.

What advice would you give to someone who's currently taking drugs?
I hope I was able to answer your questions the best I could.
I would like to share a summarised version of how I started and what happpened in between until now so that maybe itll help get a better understanding of what really happened and why.
Its up to you if you want to use any of the information I give in anyway or not. Getting my story out there I feel hopefully could benefit either parents of children that are addicts, parennts in denial thinking I raised my child better, or active users out there that feel like there's no hope for them.

Additional Information:
Growing up you would never imagined I would be the one to become a heroin addict and do the things that I have done in my life as a direct result of heroin abuse.
I grew up in a loving home, my father left as a young boy but my mother was a strong women who did an amazing job at raising and loving two boys, eventually turned into 4 children with my step father and his 2 daughters that she basically raised as her own as well.
We had everything we needed and we were loved.
I was diagnosed with a.d.d as a young boy and developed anger issues from the result of my father leaving and what I witnessed as a really young boy while my father was there.
But growing up on the outside everything looked great, but for me on the inside I was always trying to fit in which was especially difficult since I was a very shy kid.
I always tried to impress people and looked for attention anyway possible. That's how I was all my life.
In high school I joined the JROTC USMC programme and the Marine Corps was my dream, I didn't do well in school due to the a.d.d and I excelled in the JROTC program and eventually enlisting in the USMC and was shipped to Paris Island Boot Camp in Aug 2004, right before leaving I started to get dry skin and didn't know what it was, came to find out it was psoriasis and when I got to boot camp my psoriasis broke out very badly and I basically looked like a walking scab, and because of that I was given an erroneous discharge from the USMC and was sent home.
At that moment I felt like my life and dreams were over.
I didn't know what to do, and I was such an impatient person that even though I was told once it clears up  could reenlist I couldn't look that far ahead and fell into a deep depression.
When I got home and was confused at what I was going to do I started hanging out with my old friends and found out they were into heroin.
They talked about the ups and downs about heroin, but all I heard was basically "attention" and how great it was.
Unlike other people I never tried prescription opioids before then.
I never had much money so I couldn't afford the oxycontin in my area which is what most people started on before "graduating" to heroin.
Everything on the outside of my llife leading up to that night I tried heroin for the first time gave to sign of what was to come.
Once my friend laid out a line of heroin for me I literally stood there looking at it and thinking about it for a good 45 minutes.
Weighing out the pros and cons of what I knew and again all I could think about was the attention I was going to get from it, I was going to have my days filled with people to be around and things to do to get high, not really playing the tape through of how I was going to do it or even what would really happen once I do. I fell in love immediately with heroin and it didnt make me sick or have any real consequences at first.
Within a month of my first time sniffing heroin I used a needle and fell even more in love with everything about using a needle to inject heroin.
From the feeling I got from injecting heroin, to the process of setting up the shot.
Within 2 months of injecting heroin I over dosed for the first time, waking up in an ambulance after receiving Narcan which is an overdose reversal drug widely used. So within the first 3 months of trying heroin I was already using a needle and have already experienced my first overdose, it wasnt off to a great start.
I thought that OD would scare me but after leaving hospital I said I was only going to sniff it, no more shooting it, that  lasted 3 days and I was off again, I stole from my work and got fired, I stole from family and friends, and within 6 months of the first use I committed a felony and was sitting in jail dope sick for the  first time.
I was bailed out after 2 weeks and stayed clean for the next 3 months then eventually relapsed and found cocaine.
I started shooting  both heroin and cocaine and within a month violated terms of bail and was back in jail and spent the next 2 years in jail.
I was able to get high in jail a couple of times where I contracted hep c.
Hep C is so common among IV drug users it didn't bother me much or at all really.
When I was released from jail apart of my probation stipulation was complete a residential treatment programme, for the next 5 years I  was in and out, staying anywhere from 2 weeks - 5 months in treatment before relapsing.
I felt that I was to young to get clean, I didn't have much time or experiences really getting high the way I wanted to.
And that mentality kept me young and dumb for awhile.
Thinking I got this I can do this and stop any time I want to.... I just didn't want to right then.
I would get my mothers hopes up and crush them just as fast, my mother is my biggest supporter, I am a mother's boy and love my mother to death, and she saw something in me that I couldn't see in my self, I was always a good kid with manners and always polite helping others any chance I could, she would brag how great I was when I was clean and although I had an addiction problem it didn't define me as a person, there was more to me than addiction.
She has never stopped believing in me and I have put that women through the ring and back multiple times to the point where I can't comprehend why she could even still love me.
When I finally got off probation I got on the methadone clinic thinking drug replacement therapy would work for me, and it did, for 3 years, where I had 2 children, a wonderful  life with responsibilities and meaning.
What I did not have was a support network other than my family, any treatment in my life other than methadone everyday, and was not prepared  for what I would do when I started to finally come down off methadone, which I did medically correct but wasn't prepared for the uneasy feeling of tte withdrawal symptoms from slowly tapering off methadone, and because I had no support other than my family who as much as they tried to understand addiction really didn't know what was going on inside of me.
And because of my lack of preparation  I relapsed and this is where everything the older gentlemen had told  me while I was in treatment before, that if I didn't get this now that this that and the other would happen, that mommy wouldn't always be there with new clothes money and smokes when I was in treatment, all the old timers in the 12 step fellowship meeting saying that this disease of addiction is a progressive disease and if you don't stay on top of it then it will get to you.
Being young and dumb I couldn't  comprehend what they were saying when using the word progressive. 
I mean I was already injecting cocaine  and heroin, where could it progress to from there.
Well that beautiful family with 2 boys where we were financially secure and had everything  going for our future, took a downward spiral really quickly, I was able to hide my relapse for a while coming up  with excuses of why I wasn't getting paid or why I needed money for this or that, in 6 months I spent over $25000,00 my family money, $10,000 off my mothers money, and $5000 of my girlfriend's parent's money.
Even after they found out about my relapse I was still given chances to get help and come home, my girlfriend's mother even bought us a house to raise our boys in, the house was huge and beautiful, everything we could have ever needed.
But my addiction had progressed so much it was as if I never stopped those 3 years, I could not get clean regardless of everything I had going for me, I needed to destroy everything and loose everything before the thought of getting clean ever entered my mind, I gave up living with my family in that house to go sleep in a shelter, which eventually turned into sleeping on the streets in the toughest form of being homeless.
Here I am living a lifestyle I never imagined I was capable of living.
Looking back at my life wondering  what had happened, bumping into people I knew from highschool and before as they are asking me how did I get to this point, what dramatic event caused me to spiral so out of control?
Well thats the thing and the problem with societies image of drug addiction especially heroin addiction today, they think we did this to ourselves or are so dramatically scared that there is no hope for us, but that is the furthest thing from the truth, we made the descision to pick up that first drug, but after that the unbalanced chemicals in our brains took that desciision to use willingly away, for most its hard concept to grasps even for me it took awhile, I'd hear people say I used against my own will, and I'd sit there and think how do you use against your own will?
Every time I used it was because I wanted to.
But after that relapse and loosing everything I gained in 3 years to finding myself homeless during the worst winters in my area in years in 2015, I was sleeeping outside under a bridge with only a sleeping bag and a tarp over my head that was now only inches away due the the excessive amount of snowfall that winter, looking up at it wishing it would fall on me and kill me because I wasn't strong enough to do  it myself, which I had tried various times over the years, and in total over 12 years OD'd over 18 times that I could remember waking up in a hospital wondering why, how, and who found me and called 911 to save my life, resentful at those people who I did not know for saving my life.
Living homeless under the bridge eating out of dumpsters and  thinking nothing is wrong with living like this, wondering well  at least it can't get any worse than this right?
That's the lie addicts tell ourselves, it can't get any worse than it already is, well it always gets worse, and for me I woke up one day so completely uncomfortable with my lifestyle that it scared me, and that day I sought out treatment where I truly wanted it this time, after multiple attempts at detox facilities and residential programme, psych units and every other treatment option out there I tried again, that's where the spark was ignighted inside of me, I wish I could say I have been clean since that day but unfortunately I had more trials and tribulations to go though, and thankfully I found what works for me, currently today I attend 12 step meetings daily, I am on a medication called Vivitrol which is a once a month injection in the bum that is a oopiate blocker, helps wth the cravings, there are no side effects, no withdrawal symptoms and it doesn't allow me to get high, I could inject myself with heroin right now and I would die before I felt any high off of the drug.
I have amazing suupport from that amazing mother of mine along with a wonderful supportive girlfriend and everything set up for a future I am truly grateful for today.
After 56 detox facilities, 6 psychiatric units, 14 residential treatment facilities, 1 drug replacement therapy programmes, at 29 years old and 12 years of heroin abuse, I have never been more confident about my sobriety and hopefully about my future.
I have not seen those 2 beautiful little boys in almost 3 years due to the lifestyle I couldn't get out of after the relapse off the methadone clinic, I've struggled with the guilt and shame I have from being out of their lives for so long, but with the support I have today I know I will see them again real soon. 
If you were to meet me today, nothing about my physical appearance, nothing about the way I conduct myself today, and nothing I talk about on a daily basis with regular people outside my 12 step meetings would give you any indication of the man I just told you about was really me.
People that know me today and have known me through out my whole life see the change in me today and see the real person I was always suppose to be. so if you think it couldnt posssibly happen to your child you want to think again and look for warning signs, nothing that happened in my life had anything to do with how my mother raised me, she did an amazing job with 2 boys and 2 girls, I made all the bad decisions on my own, without her support I wouldn't be here today.

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Help & Support:

https://www.niaaa.nih.gov/alcohol-health/support-treatment

http://www.smartrecovery.org/

Sunday, 5 June 2016

Post Traumatic Stress Disorder


Post Traumatic Stress Disorder otherwise known as PTSD is a psychiatric disorder that can occur after a serious incident or traumatic event.

Rachel age 31 was diagnosed with PTSD just 3 years ago after a series of emotional and frightening events that she has experienced over the years.

Rachel kindly agreed to an interview with me.

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An Interview With Rachel:

What is your name and age?
Rachel and I am 31

When were you diagnosed with Post Traumatic Stress Disorder?
Three years ago

What symptoms did you / do you have?  Anxiety, Flashbacks, Nightmares, Depression, Insomnia, Outbursts of anger, Irritability

How was a diagnosis made? 
Through Behavioural Therapy (Counseling)

How was this / is this treated? Sometimes it will be treated with meds (anti depressants).
For me I am blessed to be part of support group on line and I have friends and family that are very supportive.

How does this condition affect your daily life? 
For some it means that they can’t work.  They keep themselves shut up in their house. 
It is their way of coping with it.
For me I try and keep myself busy. 
I have hobbies that I do. 
I love photography and being out in nature. 
That seems to help me regain my thoughts. 
At night for a long time I had to have a baby monitor so that I could hear my mom snoring. 
It helped me when I had a nightmare to ground myself. 
Then I got to the point that I was able to ground myself. 
So, I turned the monitor off and had a small nightlight. 
Now, I don’t have to have that. 
I still have rough nights but I am able to remind myself that I am at home.  Grounding means that I bring myself back to the present. 
Remind myself that what happened is in the past. 
That I am safe now. 
For over half my life I lived in fear. 
I developed PTSD when I was 5 years old.  Life got worse for me. 
My life was lived in fear and with PTSD.

Apart from medication(s) have you tried any alternative therapies?
I am not currently on meds. 
I am trying herbal ways of dealing with things. 
I went through two years of therapy. 
My therapists gave me coping ideas to help me on the bad days. 

What was the cause of your condition? The first cause was my Grandfather passing away. 
Then for 13 years I went through physical abuse. 
22 years of emotional abuse. 
Then in early 2008 I was in a car accident and was also held against my will for two weeks. 
In that time I was brutally raped, beaten, and tortured.
I got away from that and I got married later on that year. 
That ended in divorce because of abuse and my husband raping me. 
In 2009 I went through a rape and ended up pregnant. 
In January my best friend walked out of my life and I lost my unborn child. 
From the time that I was in middle school until May of 2010 I lived on the streets on and off.  That was a great deal of stress and I believe that also contributed to my PTSD.
My biological parents are the ones that caused me all the pain that I am in today. 

Do your friends/family understand your condition and support you?
My family that I have now are super supportive and have helped me through everything. 
I have amazing friends who have seen me through some of the darkest times in my life. 
They all support me no matter what.

What is your prognosis for the future in regards to your condition?
Not sure. 
I also have other health problems that keep me from working.

What advice would you give others who have recently been diagnosed with PTSD?
Get in to counseling, they will give you things that will help you. 
If you can, get in to groups. 
Either ones that are specifically for PTSD or ones that have to do with what you have gone through. 
Reach out, even though it is hard do it.  You will make friends and have people that will be behind you. 
People that understand your feelings because they have been through it. 
Pick up a martial art. 
It will help you regain some power in your life and help you work out frustrations, help you feel safer because you can protect yourself.
Pick up a hobby preferably one where you can get outside. 
I do photography that puts me out in the middle of nature. 

What additional information can you share with me?
These are web sites that I have found that have great information about PTSD.
https://en.wikipedia.org/wiki/Posttraumatic_stress_disorder
http://www.helpguide.org/articles/ptsd-trauma/post-traumatic-stress-disorder.htm
http://www.webmd.com/mental-health/post-traumatic-stress-disorder
http://www.mayoclinic.org/diseases-conditions/post-traumatic-stress-disorder/basics/definition/con-20022540

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